World Hospice and Palliative Care Day 2013

World Palliative Care Day is celebrated on 12th October Each year.As the pioneer organization in Sri lanka to promote palliative care CCA is planning for few activities. CCA is the first to build and maintain a Hospice outside Colombo -Kurundankulama Anuradhapura free of charge for the Cancer patients.Also it is the first to start a Free Home Based Palliative Care Service in Sri Lanka.

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Staff training and providing standard palliative care with trained nurses is a challenge to CCA.

This years theme for the world palliative care day

“Achieving universal coverage of palliative care-Dispelling the myths”

Urgent action needed to improve access to hospice and palliative care: It is time to start dispelling the myths

Although we have made some progress, there are still millions of people around the world who do not have proper access to hospice and palliative care. For World Hospice and Palliative Care Day 2013, the Worldwide Palliative Care Alliance and its global partners are focusing on “dispelling the myths,” and encouraging people to promote the facts about hospice and palliative care.

On October 12, 2013  Cancer Care Association  Sri Lanka will be working to dispel the following inaccurate perceptions:

MYTH: Having hospice and palliative care means you will die soon.

FACT: Hospice and palliative care is not just for the end of life. It is a holistic approach that includes caregiver support, spiritual care, bereavement and much more.

MYTH: Hospice and palliative care is just for people with cancer

FACT: All those who are diagnosed with a chronic life-limiting illness can benefit from hospice and palliative care

MYTH: Palliative care only manages pain through the use of addictive narcotics.

FACT: Palliative care is whole person care that provides psychosocial and spiritual care along with pain and symptom management.[i]

“Shockingly, 42% of countries do not have any identified hospice and palliative care services and 80% of people globally lack adequate access to medication for treatment of moderate to severe pain[ii]. This means that millions of people, especially in the developing world, are living and dying in unnecessary pain and distress,” stated David Praill, Worldwide Palliative Care Alliance and Chief Executive of Help the Hospices.

To ensure all those with life-limiting conditions are cared for with dignity and according to their wishes,CCA is calling for nationally integrated hospice and palliative care health systems around the world.

Dr.Samadhi Rajapaksa stated:

“Hospice and palliative care are essential for any national health care system to fully care for those with the most serious chronic illnesses. Palliative care is for all persons with limited life expectancy no matter what their disease or age. Palliative care is safe, effective and promotes dignity, comfort, and support.”

To mark this day of action, advocates, patients and carers are unified in calling for urgent action from UN agencies, governments, the private sector, and civil society to improve access to palliative care for people with life-limiting conditions by integrating palliative care into existing services. They also urge these institutions to engage in public education to dispel unhelpful myths and promote hospice and palliative care facts.

“World Hospice and Palliative Care Day is a day of celebration for the progress that has been made in reducing pain and suffering. But it is also a day to shine a light on neglected or marginalised groups that are still unable to get the care that they require,” Added Sharon Baxter, Worldwide Palliative Care Alliance and Executive Director of the Canadian Hospice Palliative Care Association.

In addition to better integration of hospice and palliative care into health care, the global hospice and palliative care community is stressing the need for:

  • More training for health professionals and carers;
  • Improved access to pain and symptom management medications;
  • The inclusion of hospice and palliative care into existing health policies;
  • Opportunities for older people to be involved in decisions around their care.

To mark World Hospice and Palliative Care Day 2013 thousands of people in over 70 countries will come together at more than 1,000 events to celebrate, support and speak up about hospice and palliative care.

In Sri Lanka palliative care is a developing field where the coverage less than 1% from the requirement.Out of 18000 new cases presenting to National Cancer Institute 1/3rd will require palliative care within one year of diagnosis due to late presentations with disseminated disease.

World Hospice and Palliative Care Day Seminar and workshop

CCA is organizing a workshop in order to celebrate the above day at the Auditorium of the National Cancer Institute of Sri Lanka , Maharagama at 4pm  on 12th October 2013.Their will be eminent speakers who are specialists in their field of Medicine talking about palliative care.An expected crowd of 200 to be participated for the event.

All are Welcome!

Home Based Palliative Care Service

CCA is the only organization to provide Home Based Palliative Care to Patients free of charge now. This service is currently available only in Galle District; Southern province of Sri Lanka.

CCA is planning to launch this service on 12th of October 2103 in Colombo district-Capital of Sri Lanka. CCA will start its Home Based Palliative Care service in the other districts as well in the future.

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Also there will be many activities  arranged at the Kurundankulama Hospice and also Galle by the relevant branch officials.There will be a few Home visits organized by the Karapitiya Branch in the due course.

This year activities are to be funded by the Help the Hospices UK.

For further information please contact CCA.

 

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